Celine Dion’s older sister, Claudette, has provided an update on the singer’s debilitating experiences with the neurological disorder known as Stiff Person Syndrome (SPS).
“She works hard, but she has no control over her muscles,” Claudette Dionne told Canada Newspaper. 7 daysfor every daily Mail. “What breaks my heart is that she was always disciplined. She always worked hard. Our mother always told her: ‘You will do it well, you will do it right.’”
Last December, the 55-year-old “My Heart Will Go On” singer shared that she had been diagnosed with an incurable neurological condition and was canceling her upcoming tour dates.
Then in May, Dion was forced to cancel the remaining dates of her world tour. The Canadian musician said she is “working hard to get my strength back.”
She added: “I’m so sorry to disappoint you all again. It’s not fair to you to keep postponing shows, and although it breaks my heart, it’s best that we cancel everything now until I’m truly ready to get back on stage again.
However, in the new interview, Dion’s sister downplayed the possibility of her returning to full-scale touring. She said: “It is true that the goal in our and her dreams is to return to the stage.” “In what capacity? I don’t know.”
Claudette Dionne added that the rarity of the condition means there is little research into treatment: “The vocal cords are a muscle, and the heart is a muscle too. That’s what comes to get me. Because it’s one in a million, scientists haven’t done a lot of research.” Because it did not affect a large number of people.
She added that Celine and her family remain optimistic: “Some people have lost hope because it is an unknown disease. If you knew the number of phone calls the foundation makes regarding Celine! People tell us that they love her and are praying for her. She receives many letters, gifts and blessed crosses.”
SPS is an autoimmune and neurological disorder that causes stiffness in the trunk and extremities. Symptoms also include muscle spasms, which have affected Dion’s ability to sing and perform, and can be triggered by environmental stimuli (such as loud noises) or emotional stress.
You can find more information about stiff person syndrome here.
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